pokoono11 years ago

Hi Eileen, Ihave exactly the same problem as you and the dystonia is so painful.

i wondered why I was detereioating so fast i find it difficult to type and when the pain shoots down my leg i hit alll the wrong keys.

pokoono11 years ago

i forgot to say you can have Botox injections for dystonia

olpilot11 years ago

I also have PD with very little tremor, mostly internal. I have dystonia in my righht leg and foot. My neuro put me on amantadine 100 mg twice a day and the relief was almost immediate. Very little cramping in my legs anymore, and almost no twisting of my foot and toes. Ask you dr about it.

jonroberts11 years ago

You might want to consider DBS surgery. There are qualifications but it might help. Discuss with your PD specialist.

grammieof311 years ago

My doc just put me on amantadine and wow works great and fast

Eileen9 in reply to grammieof311 years ago

I wish I could take Amantadine, but I had a very bad reaction to it.

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Dennis11 years ago

Bless your heart! I know of where you write. I can't hardly spend much time at

the computer. I did read the article about the potty and I went on line and ordered it.

Wish I had the answers to your needs.

~~Dennis

etterus11 years ago

Does amantadine decrease dyskinesias? What about side effects?

cinziagiannni11 years ago

With these symptoms we could be twins and I was also diagnosed 4 years ago! we should have asidebar chat. I have had botox shots every three months for a year. The changes were dramatic for the first one-- have it in my right foot and leg, toes actually uncurled -- now not so much anymore but they are supple. I had a reflexlogy massage on Thursday and the next day my toes uncurled in the morning. I am also getting greater range of movement with cranial sacral theraphy. I am going to check out a drug called amantadine.

Eileen9 in reply to cinziagiannni11 years ago

I took Amantadine two years ago and had a very bad reaction to it. I had severe headaches, blurred vision, and severe dizzy spells. I wish I could take it as the two previous comments said how much Amantadine helped them. At first I did not know what was wrong with me and went to the doctor (not my PD doctor). I thought I had a virus of some kind. He gave me an antibiotic but it did not help. Finally after feeling really lousy for a good couple of months and 15 pounds lighter, I quit taking it and felt much better in a week.

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grammieof311 years ago

Isn't it crazy how one drug works for one person and doesn't for another WELCOME TO OUR NIGHTMARE

Im glad your better now

meredith3811 years ago

I am in the same boat as many of you, except I have bad tremor on right side. However, my biggest complaint is dystonia. It is so dabilitating and painful. My driving is becoming impaired and walking without a cane is in the past. I was dx four years ago at the age of 33 and unfortunatly it has progressed quickly. I can no longer work and don't leave my house very often. It is very depressing. Amantadine helped but caused motteling in skin. I am on Neupro patch but having a lot of nausea. I'm sorry you all have same issues but it's nice to know I'm not alone.